Below are a few of the most memorable photos I’ve taken over the past 365 days. From capturing the resiliency of the human spirit at my job at Penn Rehab, experiencing childhood through my nieces eyes, enjoying year two as a crazy cat lady,crossing off items off my to-do list and watching two of my best friends walk down the aisle- it’s been a year for the books- photo books that is!
In the end, it’s not the years in your life that count, It’s the life in your years.
9th birthdays are supposed to be celebrated with cake, ice cream and memory making. And although Weston will be celebrating his heaven on September 3, all of those things will still be enjoyed through the people that carry on his legacy with the same heart that is heavy with grief.
In honor to celebrate the life of their little prince, Julie Keeton and her family has asked for people to pay it forward in honor of Weston’s birthday. Buy someone a cup of coffee, bring in donuts to work in the morning, buy candy for the nurses at your local doctor’s office. Whatever it is, make the world a better place by showing kindness.
If you do pay it forward in honor of Weston tomorrow, be sure to tag @WestonsWarriors on Facebook and Twitter. You can click here to learn more about Weston and the impact he had on not just my life, but the lives of so many. I miss Weston a whole lot, and the only way to honor his bubbly spirit is to celebrate his love for life. He will forever be my miracle on 34th street that reminded me what life was all about.
Originally Published on Huffington Post on 12/09/2014
Oh what a difference 365 days can make. Apologies for the starting this story with such an overused cliché, but it’s the only phrase that captures the event that have happened since the publication of the original ‘Miracle on 34th Street’ story. This was not the follow up piece I had intended to be writing a year later, but realistically I hadnever thought I would befriend a little boy from Tennessee and his family.
This time last year, a gravely ill little boy named Weston Keeton occupied the corner room of the 6th floor in the CICU at Children’s Hospital in Philadelphia. Despite being tethered to literal lifelines in a hospital room, an unparalleled energy radiated from his room which was perpetually occupied with the chatter of his seven siblings and visitors from all over the region as he battled pediatric pulmonary hypertension.
His parents, Julie and Adam, and world-renown medical staff were facing an uncertain future. The only thing certain was that a heart and double lung transplant was the sole way Weston would see another year. After three years of agonizing waiting, the phone call that was prayed for each night was received by Julie in the early morning of December 12, 2013. Thus began my experience in witnessing of the events that unfolded in the original Miracle on 34th Street article, just two weeks before Christmas.
During hours after transplant, my mind wandered about what 2014 would be like for Weston and his family. Everyone who rooted for this little boy during his long journey on the transplant waiting list was anticipating seeing the promise of new life. That was the miracle, wasn’t it? The opportunity to regain a normal life for a 7 year old boy and his family.
And in a blink of an eye, the expectations for the upcoming year were deflated. Instead of 2014 being the year of Weston’s recovery, it became the year of heartache. As the weeks passed in the new year, complications arose that no one was able to foresee during a time of promise.