Honoring a Little Boy’s Legacy

2015-12-06-1449371408-4855880-12309778_10207021908739042_4033955049441326037_o-thumbI want to punch March 23rd in the face. That is the initial reaction I have towards March 23rd- since 2014. The date sticks out like an eyesore on the calendar, an anniversary of a day full of memories that replay in my mind more like a disjointed nightmare.

  • It’s the day where I received the text message that my buddy Weston gained his wings.
  • It’s the day where I witnessed two of the strongest people in the world, Weston’s parents, Julie & Adam, spend hours consoling a hospital reeling from the lose of their little boy simultaneously grieving themselves. Rather than being isolated with their own grief, they welcomed a steady stream of mourners from the hospital who had also fallen in love with the Keeton family. They gave hugs, dried tears and thanked staff for their care. The true meaning of family and community was demonstrated as they mourned alongside others grieving their son.
  • It’s a day where I walked inside a Jimmy Johns and demanded the man at the counter make us a sandwich tray even though the store was about to close.
  • It’s a day where I carried a little boy’s teddy bear outside of his hospital room, because the arms that once held it tight was no longer here.
  • 11894578_10155916357870063_7526162772039543462_oIt was the day where walking out of the hospital after saying my final goodbyes to Weston brought me to me knees. I put my hands over my mouth to try to make the sobs stop but they were too strong. It hit me that not only would I never see Weston again but I would lose the sense of family that I had found in the unlikeliest place
  • It is the day 7 year-old Weston Keeton gained his wings after putting up one hell of a fight with pulmonary hypertension & a heart & double lung transplant.

Instead, it will be a day where I deliver cookies & chocolate covered strawberries to the superheroes that care for the children on the 6th floor of the Cardiac Intensive Care Unit at CHOP- where Weston was cared for throughout his transplant journey.

image1 (1)While there are many others who would also like to punch March 23rd in the face, they will be delivering baked goods, meals, supplies and love to firehouse & service workers across the country. All as part of the 2nd annual ‘Feed the Fire’ day of service in honor Weston Keeton’s 2nd year angel-versary.

Feed the Fire is a call to action for people from across the country to adopt their local fire house or a group that provides service. Weston adored firefighters & dreamed of being one when he grew up. During his lifetime, firefighters from across the country took time to send him letters, photos, gifts & even to make special visits. Julie & Adam Keeton made the decision to honor Weston’s heroes, and asked that all of those who had been touched by their son’s story to do the same.

In 2015, 102 firehouses were adopted nationwide with local heros being treated to potluck dinners, donated supplies, and care packages full of treats (including Weston’s favorite, Hot Cheetos). Even more firehouses & heros will be honored tomorrow, which is an incredible achievement for the 2nd year of Feed the Fire.

You can learn more about Feed the Fire by visiting www.westonswarriors.com or by v1185909_10153899978620063_58327903_nisiting the Weston Warrior’s Facebook page.

 

While March 23rd will still be a difficult day for so many that miss that sweet little boy, there is comfort knowing that his legacy continues to bring the best out in people. Without a doubt Weston changed the course of my life for the better. I often say the little boy with the broken heart taught me how to love again.  Forever, I will be grateful for the Miracle on 34th Street.

In 2012 when I first met Weston as part of my coverage for Gift of Life, little did I know that it would turn into a privilege of chronicling his legacy. Below are links of feature pieces that I have written about Weston & the Keeton family.

A Year at Penn Rehab

11139367_1061647397198175_1431669535885815449_nLast Tuesday marked my one year anniversary as the Marketing and Communications Specialist at Penn Rehab, also known as Good Shepherd Penn Partners. The organization of the therapy provider for Penn Medicine, including acute physical and occupational therapy in all of the Penn Medicine hospitals (Pennsylvania Hospital, The Hospital of the University of Pennsylvania and Penn Presbyterian Medical Center), in-patient and Long Term Acute Care on 1800 Lombard Street in Philadelphia, and outpatient services across the region (known as Penn Therapy & Fitness).

11043011_1019303038099278_386451778405980983_nI clearly remember stumbling across the posting on a Sunday afternoon at the coffee shop. I was at the point where my life was finally coming together again and my heart was missing the work in healthcare. The food banking industry was rewarding, and Philabundance was an amazing experience, but it did not fuel me the way my work at Gift of Life Donor Program and Gift of Life Family House did. Being in physical rehabilitation was a chance to be present in capturing the heart of an aspect of healthcare without such a life or death weight, like organ donation. However to my surprise there are many pre-transplant and post transplant patients that receive physical therapy with us!

The day after emailing my information,the recruiter reached out to start the interview process. Two weeks later I was hired, and four weeks later I began my adventure. I accepted the offer in the parking lot of Ikea, and spent an hour afterwards wandering around the store in disbelief. Not only was it a generous salary increase, but came with my own door. To someone who spent the past 3 years in bullpen on top of coworkers for 8 plus hours, this was a luxury. Similar to the moment when little orphan Annie walked into Daddy Warbucks’s mansion (dramatic but you get the point).

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Feed the Fire- Honoring Weston Keeton

Screen Shot 2015-03-21 at 12.11.45 PMI never thought a year ago I would be writing a press release and helping my friend Julie organize an event to honor the one year passing of her son, Weston. But on Monday, March 23, it will be exactly a year since I received a text message that my buddy Weston gained his wings. A year later, Weston is missed more than ever but the Keeton family continues to keep his spirit alive by paying it forward.

Many parents cannot even fathom what the Keeton family has gone through. Yet Julie and Adam Keeton are showing that it is okay to honor the ‘angel-versery’ of their son. Since Weston adored firefighters, the Keeton family planned a special event called ‘Feed the Fire’. They have asked supporters from across the country to adopt their local fire house, by donating meals, supplies and snacks. Over 62 fire houses will be ‘adopted’ on Monday, March 23.

Myself and my friend Jen will be adopting Manoa Fire Company in Havertown,PA.  You can click here to read the press release.

98.1 WOGL interviewed Julie and I for this awesome piece promoting the event. You can click here to read it. 

Julie was also interviewed on WJHL last week. You can click here to watch the clip.

To learn more about Weston and Feed the Fire, visit www.westonswarriors.com.

Stay tuned for a recap of the event!